Landon had a great day and night yesterday. He got several more lines out, including catheter, 2 of his IV lines, breathing cannula, and several more things. He's down to just a few meds, a tube to draw the acid out of his stomach (since he's not eating right now) and the monitors.
He's been such a trooper through this whole thing and we're happy to see him much less tethered and looking more like our sweet baby again! He's really enjoyed being swaddled and held the last few days and we've enjoyed getting to hold him! The nutrition they are giving him should meet his needs but doesn't fill his tummy so he'll still get hungry until we can feed him again, but we're told not as hungry as he would without the IV nutrition (TPN & Lipids).
We just heard that they are probably going to move him from CICU to CPCU (Cardiac Progressive Care Unit) today. This is a step down in the level of care because they don't feel like he needs intensive care anymore (YAY!) This means he will no longer have a dedicated nurse (They've had him at 1:1 with a nurse since surgery) but it also means he shouldn't need it and that we'll have a private room, which will be nice. Where we are is a pretty open floor that has curtains that separate some of the units so it will be nice to have a barrier to other kids crying and other monitors alarming and stuff.
Some of the grandparents are headed back home today but my (Allison's) mom is staying with us for the time being. It's been so great to have them here and let them meet their grandson! He is the first grandkid in my family and the 2nd (but the first boy) on Gary's side.
We are thrilled with how well he's done these last few days. He's like superman- leaping multiple heart meds and IV lines in a single bound! :-) Really we know that God's hand has been on him and has given him the strength to endure all of the pain and frustration of the last 5 days. We know that the Lord will continue to provide him the strength to handle the recovery and future surgeries. Thanks for all of your love and support- it has meant so much to us that there are literally people all over the world extending their love and praying for our son!
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