Last night at 4 a.m. Landon woke up in a lot of pain. They gave him some vicodin and unfortunately he basically skipped a feeding because of the discomfort. His heart rate has remained low which is expected but still concerning.
Times like this can be sobering reality checks of how much pain he is in. I just want to bear all his pain, but I know I can't. I know this is an integral part of his life story, but doesn't mean I have to like going through this. We just have to trust God has control of this. Just wish he was old enough to cognitively have a relationship with Christ to lean on.
Allison and I have been a terrific team of support. The smiles have helped. Thankfully he has eaten much better following this surgery as compared to the last. There are few things more frustrating than knowing your child wants to eat but can't for a myriad of reasons.
He continues to do well but the pain management can be difficult to gauge since he has limited ways of telling us until it hits him hard.
Gary
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