Gary here. Has Landon been grouchy and irritable? Yes, but I'd say he has handled all of this like a champ. Let's just review all he has been through to this point.
We started this journey November 4th and tomorrow the calendar turns to December.
Nearly 20 trips to get x-rays, which he hates and I don't blame him.
About 8-10 doses of medicine everyday.
5 or 6 IVs (I've lost count). Many failed IV sites too that have left cuts and bruises.
Pokes and prodding every 4 hours at a minimum, even while he sleeps. Blood pressure readings aren't fun for toddlers.
5 chest tubes. Excruciating, yet he was basically running today with the chest tube in. Running better when it came out for sure.
The large incision on his chest, which is looking great by the way.
The very annoying and irritating oxygen tube shoved up his nose.
A total of six procedures where he has been under sedation over the last three and a half weeks.
He is on a low fat diet so he can't eat many of the things he loves, including his milk.
There have been so many times where he has asked to be held and I couldn't hold him the way he wanted because of the chest tubes. Frustrating for all of us.
I cherished today with no chest tube. I tried to hold him as much as possible knowing that freedom could be stripped tomorrow. I think my shoulder hurts from all the holding. The second x-ray today he didn't cry at all. A huge blessing and break.
Landon is a hero. A fighter. A winner. Brilliant. You should hear him speak. See him do puzzles on our tablet. A charmer with his personality.
Praise God for his spirit and the testimony that is being written. An incredible story he will forget since he's so young but which will always be a part of who he is. So very proud. One day at a time.
He is also an inspiration. Grandpa
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