Excellent Follow-up Appointment

Landon's follow up today went well.  Xray was a battle as always and he was pretty upset for this one, but the xray is much better than last week's!  It's much more clear which shows the fluid starting to dissipate.

 

His saturations have been really good lately too (93 or so on room air and 96 or so on oxygen) so the Dr said we can take him off oxygen during the day although we'll still put him on it at night.  It will make his playtime much more fun though!  No more distance restrictions or tripping over the cord.

 

We are sticking to the low fat diet for a few more weeks and expect he will be taken off of that at his next appt (Dec 30) as long as the xray then still looks good.  So we'll have to make sure to have a Thanksgiving/Christmas meal on New Years Day as long as we get the go ahead.  He also had one dose of one of his twice a day meds (enalopril) removed so we are slowly starting to come off the medicine.

 

Great report and he did really good (aside from the xray) but this time was minimal bothering since no labs/ekg/echo. 

 

The PLE test still has not come back (it is taking forever) but Dr B said he would be shocked if that's positive considering how well Landon is doing.  The other stool sample test we did for a bowel infection came back negative. 

 

He's making great strides (literally and figuratively!) and we are so glad to see where he is now as compared to a week ago.