if you get email updates of our blog posts you may have received an old post last night from a year ago. sorry about that! I'm not sure what happened but I'm guessing maybe it was a glitch with Google or something because we didn't post anything yesterday. rest assured Landon is healthy and happy and not in the hospital like he was a year ago!
Friday, February 1, 2013
Wednesday, January 30, 2013
Pics - Take 2
Here are the pics I tried to upload before- for some reason they didn't fully load into the blog post.
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| Before - see the wings? |
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| Side view - before |
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| He wasn't quite sure what she was doing back there- he kept reaching back right as she was about to snip. |
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| Clean Cut boy! |
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| Look, you can see his ears again! :-) |
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| Christmas at Grandma and Grandpa's |
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| With Grandma and his cousin, Abigail. |
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| Playing with Daddy's Hat. He loves wearing it around |
Sunday, January 27, 2013
1 year ago. . .
Yesterday was 1 year since Landon's last surgery, the Glenn. It feels like a lifetime ago (which for him it is) seeing him like he is now so happy and healthy and active. We went for donuts after church today as a special treat, in the future we'll probably do more to celebrate his "heart"iversaries but right now it's just another day to him. We'll have to balance not ignoring his diagnosis but not constantly making him feel different It is such a gift knowing that right now he doesn't even understand that he's any different than other kids (and looking at him, you would never know it either!)
He has another ear infection over Christmas (his first one since getting tubes) so he was extra cranky while we were traveling but all things considered he did pretty well. Since then he's had a little bit of a stretch without being sick. He's cut several teeth- I was brave and stuck my finger in his mouth to get the latest total yesterday and he's up to 12, 4 of which are molars. It was a rough few weeks while those all came through. We are over halfway there & we'll be glad when he cuts that last one, though that will be a while!
We're still working on getting him walk- it has been a long and arduous process! He's still going to PT and has definitely made improvements. At this point it seems like he just has to make the decision that he wants to walk and it will happen. He just stood up in the middle of the room by himself for the first time today so we are hoping it's very soon! He's just started climbing up on chairs and the couch and climbing back down too, which he thinks is a lot of fun!
His vocabulary is constantly expanding- he's turning into quite the parrot, copying words that we say pretty often and learning the actual meaning of words all the time. Most of the time that we ask him a question he says "DAH!" (which sounds a lot like "yeah") but occasionally he shakes his head adamantly. We are glad that he is starting to communicate what he wants and doesn't want but we know that with is comes that toddler defiance when he doesn't get his way! Some of his latest words are "apple", "dog", "nana" (banana) and he has started saying mama again quite a bit.
All things considered, this has been a really fun stage with his being affectionate, laughing at everything and learning new things every day.
He has another ear infection over Christmas (his first one since getting tubes) so he was extra cranky while we were traveling but all things considered he did pretty well. Since then he's had a little bit of a stretch without being sick. He's cut several teeth- I was brave and stuck my finger in his mouth to get the latest total yesterday and he's up to 12, 4 of which are molars. It was a rough few weeks while those all came through. We are over halfway there & we'll be glad when he cuts that last one, though that will be a while!
We're still working on getting him walk- it has been a long and arduous process! He's still going to PT and has definitely made improvements. At this point it seems like he just has to make the decision that he wants to walk and it will happen. He just stood up in the middle of the room by himself for the first time today so we are hoping it's very soon! He's just started climbing up on chairs and the couch and climbing back down too, which he thinks is a lot of fun!
His vocabulary is constantly expanding- he's turning into quite the parrot, copying words that we say pretty often and learning the actual meaning of words all the time. Most of the time that we ask him a question he says "DAH!" (which sounds a lot like "yeah") but occasionally he shakes his head adamantly. We are glad that he is starting to communicate what he wants and doesn't want but we know that with is comes that toddler defiance when he doesn't get his way! Some of his latest words are "apple", "dog", "nana" (banana) and he has started saying mama again quite a bit.
All things considered, this has been a really fun stage with his being affectionate, laughing at everything and learning new things every day.
Wednesday, December 19, 2012
Merry Christmas!
Time always seems to fly and all of a sudden it's been 2+ months since we posted!
Our last post was right after Landon got tubes and we are happy to report that he has not had an ear infection since he got them! He's a much happier kid and it's so nice not having to get him to take antibiotics constantly. We had a good follow up appointment for his tubes and everything looks good so they should stay in place for 9 months or so and work themselves out eventually..
He is learning so much and is constantly observing what is going on around him. It's fun to watch him be in awe of so many things. He especially likes lights and ceiling fans and says "Wow!" that he thinks are interesting. He's almost walking on his own- he's been in physical therapy for several months now and made good progress - he cruises around everything and has recently gotten really good at walking while holding on to our hands but he hasn't ventured out by himself yet. We know it's coming soon, maybe even as a Christmas present. He's also babbling a lot and just started pointing to identify things. He says "all done", "cheese", "uh-oh" "dada" and "baba" (bottle) and is starting to experiment with other words and sounds too. He mostly refers to both Gary and I as "dada". He likes to be loud and is recently obsessed with emptying every toy bin and basket he finds! He's not so great at putting them back yet :-)
His last cardiology check up was a few weeks ago and everything looks great! His heart flow and function are good and there aren't any major concerns right now. He will have his 3rd surgery sometime in the next year or two but we'll plan it several months in advance so it won't be a surprise.
We spent Thanksgiving in Raleigh and had a great time seeing my (Allison's)! Family visits are always too short but we cherish them! For Christmas we are heading to Michigan to see Gary's family and hoping for a White Christmas (but not a blizzard)!
Gary and I are doing well too (I forgot to give updates about us sometimes). Life is busy with us both working but we are grateful for our jobs and I am grateful for the flexibility to be at home with Landon on Fridays. Gary continues to serve with the high school ministry at our church and we both love the church small group we are part of with 5 other couples (and 3 other kids!). We are also part of "Mended Little Hearts of Colorado Springs" a support group for families of kids with congenital heart defects and I have had the privilege of recently joining their leadership team. It has been great to meet other families who share similar stories to what we've experienced with Landon and to learn more about how to parent him. This is a group of life, encouragement, support and education and we have been so blessed by it.
Christmas is always a time when we are reminded to be thankful for the blessings God has given us, including sending His son Jesus to the world for us. This year we are also especially grateful for Landon's health, laughter and love of life!
Our last post was right after Landon got tubes and we are happy to report that he has not had an ear infection since he got them! He's a much happier kid and it's so nice not having to get him to take antibiotics constantly. We had a good follow up appointment for his tubes and everything looks good so they should stay in place for 9 months or so and work themselves out eventually..
He is learning so much and is constantly observing what is going on around him. It's fun to watch him be in awe of so many things. He especially likes lights and ceiling fans and says "Wow!" that he thinks are interesting. He's almost walking on his own- he's been in physical therapy for several months now and made good progress - he cruises around everything and has recently gotten really good at walking while holding on to our hands but he hasn't ventured out by himself yet. We know it's coming soon, maybe even as a Christmas present. He's also babbling a lot and just started pointing to identify things. He says "all done", "cheese", "uh-oh" "dada" and "baba" (bottle) and is starting to experiment with other words and sounds too. He mostly refers to both Gary and I as "dada". He likes to be loud and is recently obsessed with emptying every toy bin and basket he finds! He's not so great at putting them back yet :-)
His last cardiology check up was a few weeks ago and everything looks great! His heart flow and function are good and there aren't any major concerns right now. He will have his 3rd surgery sometime in the next year or two but we'll plan it several months in advance so it won't be a surprise.
We spent Thanksgiving in Raleigh and had a great time seeing my (Allison's)! Family visits are always too short but we cherish them! For Christmas we are heading to Michigan to see Gary's family and hoping for a White Christmas (but not a blizzard)!
Gary and I are doing well too (I forgot to give updates about us sometimes). Life is busy with us both working but we are grateful for our jobs and I am grateful for the flexibility to be at home with Landon on Fridays. Gary continues to serve with the high school ministry at our church and we both love the church small group we are part of with 5 other couples (and 3 other kids!). We are also part of "Mended Little Hearts of Colorado Springs" a support group for families of kids with congenital heart defects and I have had the privilege of recently joining their leadership team. It has been great to meet other families who share similar stories to what we've experienced with Landon and to learn more about how to parent him. This is a group of life, encouragement, support and education and we have been so blessed by it.
Christmas is always a time when we are reminded to be thankful for the blessings God has given us, including sending His son Jesus to the world for us. This year we are also especially grateful for Landon's health, laughter and love of life!
Tuesday, October 9, 2012
Heading home!
We went in early this morning since Landon was one of the first surgeries of the day and we are already on our way home!
The surgery went well. luckily they can still do it even with an ear infection because one of his ears was infected but everything else went off without a hitch. He had a cardiac anesthesiologist so we were grateful for that.
He did great except getting a little cranky beforehand because he was hungry. He was very happy to be able to get his bottle afterwards. Now we just wait and hope the tubes help! Thanks for your prayers!
Monday, October 8, 2012
The End of Ear Infections (we hope)
I forgot to post about our appontments in Denver a few weeks ago.
Landon saw ENT and confirmed that he needs to get tubes. He is actually having that done tomorrow - it is a surgery, but only a 7 minute one. It will be strange to go to the hospital and have surgery done probably by the time we sit down! They are supposed to have a cardiac anesthesiologist to keep an extra eye on him but we're pretty sure he'll be discharged the same day.
Please pray that the tubes are successful and that they help reduce the number of ear infections. He had 5 over 2 months and we've just kept him on the antibiotic for the last week so keep him from getting another one.
He was also seen at the cardiac clinic in Denver for developmental testing and he did great! As expected, he tested low in his gross motor but as you probably read from Gary's post today, he's making steady improvement in that area. Hopefully with fewer ear infections, his balance will improve and give him even more of a boost!
Landon saw ENT and confirmed that he needs to get tubes. He is actually having that done tomorrow - it is a surgery, but only a 7 minute one. It will be strange to go to the hospital and have surgery done probably by the time we sit down! They are supposed to have a cardiac anesthesiologist to keep an extra eye on him but we're pretty sure he'll be discharged the same day.
Please pray that the tubes are successful and that they help reduce the number of ear infections. He had 5 over 2 months and we've just kept him on the antibiotic for the last week so keep him from getting another one.
He was also seen at the cardiac clinic in Denver for developmental testing and he did great! As expected, he tested low in his gross motor but as you probably read from Gary's post today, he's making steady improvement in that area. Hopefully with fewer ear infections, his balance will improve and give him even more of a boost!
Landon seems more like a little boy everyday...
Landon is changing so fast. His ability to pick things up is increasing at a rapid pace. It is very exciting to witness. Just this past week the following things started to happen: He stands up on his own with the assistance of furniture. He started cruising too. He knows who Elmo is and will go find him if asked (and quite excitedly). Plus, anything that excites him will be uttered with an excited "Ohhhhhhhhhhh!". He is basically running when he crawls. He is beginning to roll the ball back and forth (varying degrees of success). His favorite thing to do right now is knock the cardboard blocks down that Mommy and Daddy stack up for him. We're lucky if we get them setup before he knocks them down again.
I was telling Allison last night that Landon might be catching up because God gave him a "very high motor". Football fans, you know what I am talking about when I say that. But for the others, when Landon wants to do something or wants something, he gives 100% to experience it or get it. I love it so much. His will power is quite strong. I wonder why that is? Praise God to see him progressing so quickly. What a miracle he is.
Gary
I was telling Allison last night that Landon might be catching up because God gave him a "very high motor". Football fans, you know what I am talking about when I say that. But for the others, when Landon wants to do something or wants something, he gives 100% to experience it or get it. I love it so much. His will power is quite strong. I wonder why that is? Praise God to see him progressing so quickly. What a miracle he is.
Gary
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December 2012