Friday, March 9, 2012

"Wean" on me

We've been busy the last few days! Landon has had a cardiologist appointment, a home health weekly weight check and a follow up appointment at the clinic in Denver between yesterday and today! He had his 4 month check up at the doctor's office last week (complete with shots ) - yes, we know he is 5 1/2 months old but he turned 4 months the week of surgery so we couldn't do his vaccinations then.

He is still gaining weight and growing pretty much on target (almost 15 lbs). He is still in the 10th percentile for height and weight for his age, but he's got a 50th percentile noggin! He is still pretty fussy (it's getting to be beyond "fussy" really) during feeds and starting to freak out when he's tired during the day too. We met with a dietitian today in Denver and based on what we talked about she wasn't really sure what the deal is. We're going to trying lowering the caloric density of his formula (from 26 kcals per ounce to 24) and she gave us a few different formulas to try if that doesn't work initially. We'll be starting him on solid foods soon but she wanted us to figure out what's going on first before we move on to that.

He also did some development testing today using the Bayley Scale. He did pretty well although despite my efforts to feed him at the right time so he'd be happy for it, he managed to only get a 30 minute nap on the way up there so he was pretty cranky by the time we started that. He's pretty on track in most areas and some of the areas he scored lower in could have also been do to him being angry.

As of yesterday we are weaning on the oxygen. So he has to be on it overnight and if he's napping in a separate room during the day but for the most part we can let him go without his oxygen while we're at home or if we're just out running around. We go back to the cardiologist in a month so hopefully at that point he'll tell us that we'll be off it completely.

Gary has been in Las Vegas this week for the Mountain West Conference Basketball Tournament so my parents have been here graciously helping me and enjoying their grandson! (when he's not screaming) We have been so blessed to have so much family be willing to travel to come see us and lend a helping hand! Well that's all I can think of for now- I will try to post some more pics soon!

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December 2012