A new normal

Landon has done really well since we got home a few days ago, especially considering that he had surgery just over a week ago.

His eating is off and on which is ok- we knew it would take him some time to get back to his old routine. He has moments of being smiley and happy every day which is encouraging - it helps is know he's not totally miserable all the time. There are, however, moments when he is totally miserable and those are not fun. He's still on pain meds (just over the counter stuff) round the clock for now and if we do a test and try to skip a dose of one of them to see how he does, we end up regretting it. So we'll just keep on those for now and hopefully we'll be able to cut back on them next week.

He had his first cardiologist visit (here in the Springs) since surgery today and Dr Brames said he is looking really good and doesn't seem to have any major concerns- although he did book us for 2 appointments next week. I guess we're back to seeing a doc or home nurse twice a week again for a little while.

Landon's heart rate is still low (in the 70s or 80s) but we should see this start to come back up over the next few weeks as his heart continues to heal. His sats have been pretty much where they should be which is good and it will just take at least a few more weeks for his body to get used to the new flow.

There are many challenging moments (including the pain meds and other meds, we are giving Landon 15 doses a day right now- pretty much all of those are challenging moments) but we are so grateful to be home where Landon can get good rest and be in a more familiar and relaxing environment.